When Evelyn was 4 months old, she was diagnosed with a rare genetic condition called lissencephaly. This means her brain is smooth and lacks the folds and grooves needed to process information correctly. This condition comes with many issues for her, such as severe, hard to treat seizures, hypotonia, low vision/cortical vision impairment, feeding difficulties and a shortened life expectancy, along with many other challenges. Currently, she is unable to crawl or walk and is non verbal. She has daily seizures and is completely dependent for all her daily needs.
Your purchase of an "Evelyn Strong" shirt will go toward the purchase of an adaptive van that will have the room needed to install handicap ramps. This will make it easier and safer for Evelyn to travel and be active in the community.